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Contact us


Its early days and we do not have an office or anything similar sorted at the moment.

However we do have a dedicated email. Your welcome to use it to contact us. We will try & help or point you if we can. Remember we are not doctors but  more a patient support group with some practical experience.


Note: Please do not use the **$*** in the address as we are trying to trick the spam robots ;-)

Because we are only volunteers our response can anything between super quick & embarrassingly slow - its a lucky dip for now but we will try our very best


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